id: yrw4fn

lupus treatment

lupus treatment

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Beskrivelse

Hello everyone and thank you for your interest in my fundraiser. I never expected that I would be forced to take such a step. I waited until the last minute because I always believed that others deserved help more. However, I found myself hitting the proverbial wall. I'm only 30 years old, but I can't enjoy life like my peers. Over the last few years I have been feeling worse and worse. I wandered from doctor to doctor with new symptoms constantly developing. Swollen and purulent finger joints, sharp headaches and joint pain, fainting, bruises without shocks, numbness in the limbs, facial erythema, ischemic hands and feet, constant abdominal pain. I was given painkillers and antibiotics. Doctors downplayed my symptoms and referred me to other specialists. Finally, in December 2021, I saw a rheumatologist who finally made a diagnosis in the hospital ward. Systemic lupus. It is an incurable autoimmune disease that causes my body to destroy itself piece by piece. It affects the skin and organs. There is a chance to put the disease to rest, so-called remission, thanks to the use of drugs. Unfortunately, despite taking steroids, chemotherapy, drugs that stimulate circulation and antimalarial drugs, my disease is progressing.In the hospital, apart from lupus, I was diagnosed with multilevel discopathy of the cervical spine with bulges modeling the dural sac, spondylolisthesis and cysts on the nerve roots, ovarian cancer and vitamin D deficiency, which my body does not absorb and must be regulated with medications. Since leaving the hospital, unfortunately, the disease is accelerating and I feel increasingly worse. There were rashes and skin abscesses, swelling and pain in the joints, proteinuria, deterioration of blood results, a tumor on the thyroid gland and the worst vision disorders and pain throughout the body, preventing me from functioning normally. After further tests, I became a patient of the osteoporosis clinic (densitometry showed that at the age of 29 my bones were very weak and I had osteoporosis), endocrinology (the thesis was detected in an EMG test after epileptic seizures), neurology (multi-level problems with the spine and inflammation of the joints between the vertebrae). , spondylolisthesis, abnormal bending of the spine, periradicular cysts and cancerous nodules), pain treatment (pain in basically everything and additionally diagnosed with fibromyalgia - huge trigger points that don't let me sleep and pain in all joints and spine, as well as paroxysmal headaches), cardiology (ECG abnormalities, resting pulse significantly above 100, hypotension alternating with hypertension),psychiatric (depression due to the disease and the affected nervous system), rheumatological (systemic lupus), gynecological (constant inflammation, erosions, cysts, ovarian cancer), dermatological (lupus and drugs have caused many skin diseases), gastrointestinal (digestive problems caused by drugs, among others including analgesic buprenorphine patches, anal ulcers and hemorrhoids), hematology (abnormal blood count), nephrology (proteinuria), ophthalmology (deterioration of vision due to antimalarial drugs with hydrochloroquine and steroids) and rehabilitation. Every day is a surprise for me as to what will happen to me today. And everything is wrong. I am slowly losing my strength and will to live. The doctor clearly outlined to me that if I did not try the treatment, the next stage would be the loss of full mobility and the use of a wheelchair.There is no cure for lupus yet. However, research is still ongoing, including: In the USA and Switzerland. You can only try to extinguish the disease. Due to my increasingly poor well-being and results, I had to stop working. More and more often, I have periods when I sleep for several days without having the strength to get out of bed and become dehydrated. My walking is getting worse due to the affected joints. Recently, the joints in my knee that have undergone ligament reconstruction have been attacked. Unfortunately, there are huge queues everywhere and I can't get my head around my treatment and I don't have the strength to do so. According to the doctors' recommendations, I submitted an application for a pension and the assessor agreed to my request. Unfortunately, the management of ZUS reported that the judgment was defective and sent me back to the committee, the result of which was predictable. Refusal to provide benefits. According to the doctor's recommendation, I will appeal to the court because the benefit is due to me in accordance with the doctors' opinion. My dream is to complete the diagnosis as soon as possible how much damage lupus has done to my body. Repairing my health and putting the disease to rest so that I can return to my old life and work, at least for some time. Today she feels powerless with no means of subsistence. The way I was treated by an institution that was supposed to help people and to which I paid high fees takes away my will to live. I hesitated for a long time what to do, but my life and health should come first, so I will fight in court and take part in a clinical trial. However, I need funds for doctor visits (queues for the National Health Fund do not provide a chance for diagnosis and treatment), medications and for maintenance because the state left me with nothing.I have always been full of life and joy, and today I look at every day with fear and uncertainty. My dream is to focus in the next year on improving my health and not on the dilemma of how to buy medicines. I no longer dream of a complete cure because I know there is no chance for it, but I believe that the disease will not completely destroy me. Due to painkillers and antipsychotics, I can no longer drive a car and chemotherapy is weakening me more and more. I am asking everyone who is able to help me. He doesn't expect much just to have enough money to survive. I have always tried to help others, but today I need help. And I hope that good things come back. Please help me in this fight. I have all the documents that I can show as proof of the authenticity of this collection.


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