This fundraiser is for our daughter Olga, aged 8, who was diagnosed at 7 months with a rare spontaneous mutation in the lamin gene, which causes muscular dystrophy. Since the age of 2, following a choking incident, she has had a tracheostomy and gastrostomy and is on a ventilator.

She is in a wheelchair! She has a very good grasp of things, a zest for life and great strength of spirit!

After nine trips to a clinic abroad for assessment and monitoring, we had an orthopaedic support brace made for her (as you can see in the photo), thanks to which she goes to school when she is well and plays the piano, which she loves very much! Three trips a year are required to have it made, and one to have it modified.

Alongside these trips, we managed to get her an electric wheelchair so she can drive it herself, which requires home modifications such as a ramp and a specially adapted car.

Every day she has home-based therapies such as physiotherapy, occupational therapy and speech therapy, and requires many consumables, as you can see in the photos, due to her tracheostomy and ventilator.

We have four trips ahead of us and all the above arrangements need to be completed by the end of March.

Furthermore, a trip to the Netherlands for an assessment, in the hope of finding a treatment, is still pending.

We are hoping for your help so that we can help our daughter lead as normal a life as possible and have opportunities for treatment and rehabilitation!

Thank you in advance from the bottom of our hearts!