Good morning my name is Francesca and I am Penelope's mum. Penelope suffers from a rare degenerative disease, Ehlers-Danlos syndrome. This syndrome is a rare hereditary connective tissue disease. Involving the entire musculature, Penny suffers from hypotonia, hyper ligamentous laxity, constant subluxations of joints, fibromyalgia so constant pain, gastroparesis, osteoporosis with spontaneous fractures, incontinence. This month it has worsened and all the MRIs and examinations I have had to deal with privately because of the timing. I am aware that there are associations well ahead and that I am not eligible for any tax benefits but please if you can help me to help my daughter so that I can make her walk as long as possible. If you have any doubts, I am willing to show you all the documentation.

Thank you very much to those who will help us.

Mother Francesca and Penelope

Good morning, my name is Francesca and I am Penelope's mother. Penelope suffers from a rare degenerative disease, Ehlers-Danlos syndrome. This syndrome is a rare hereditary connective tissue disorder. It involves all the muscles, Penny suffers from hypotonia, hyper ligament laxity, constant subluxations of the joints, fibromyalgia resulting in constant pain, gastroparesis, osteoporosis with spontaneous fractures, incontinence. This month it got worse and I had to deal with all the MRIs and visits privately due to the timing. I am aware that there are well-known associations and that I cannot make you benefit from any tax breaks but please, if you can, help me to help my daughter so that I can make her walk as long as possible. For doubts and scams, I am willing to show you all the documentation.

Thank you very much to those who will help us.

Mother Francesca and Penelope