Hi,

My name is Kacper Kreft. I was born on 9 March 2003. I have had Leber’s congenital amaurosis since birth. Because of this condition, I am completely blind and can only perceive light. In practice, this means that I can tell the difference between day and night, but nothing else.

In my spare time, when I’m not in hospital, I develop software that helps blind people use apps that aren’t officially accessible or don’t work properly with screen readers. For example, if a service such as Facebook were to become inaccessible to screen reader users and blind people were unable to use it, I would do everything in my power and to the best of my knowledge to create an alternative interface enabling access to its features with fewer difficulties. If I have the energy after my dialysis session — and I’ve been having them for several months now — I also run my own internet radio station.

A few years ago, I started having heart problems. My heart rate would suddenly rise above 140 beats per minute, even when I was lying in bed, and during physical exertion it often exceeded 170, which was very dangerous. The situation improved slightly when I put on weight. Currently, at rest, my heart rate usually stays below 100, which allows me to function relatively normally.

More serious health problems began about a year and a half ago, when I lost consciousness at work. Following this incident, I was admitted to hospital, where doctors detected abnormalities in my blood tests and decided that further diagnostic tests were necessary. In November, I underwent a biopsy of my left kidney, as the earlier results had not provided a clear answer.

In January, I learnt that I had a genetic kidney disease which had been damaging my kidneys since birth and had brought them to a critical state. Between the biopsy and receiving the diagnosis, at the end of December, I was admitted to hospital again. I was discharged at the beginning of January with results that barely allowed me to function. In March I was hospitalised again, and the situation reached a critical point in May 2025. That was when my long and very difficult stay in hospital began, lasting over eight weeks. I was admitted to the intensive care unit in a life-threatening condition, with levels of substances vital to the body dangerously low in my blood. In July, I underwent surgery to have a catheter implanted to enable peritoneal dialysis. I started my first dialysis sessions in mid-August.

Everyone told me that dialysis would help and that I would feel much better. Unfortunately, no one mentioned just how exhausting it is. Dialysis drains the body of enormous amounts of energy. There are times when, after a session, I am unable to get out of bed on my own and need my brother’s help.

Dialysis is also painful — very painful. When the machine tries to drain fluid from the abdominal cavity, even when there is nothing left to drain, the pain is sometimes so intense that I almost lose consciousness. Perhaps others go through this without pain, but unfortunately I am not one of them.

That is a brief, though difficult, summary of my story. Now I would like to explain why I am here.

I am asking for support for my passion, which is the most important thing to me. It is the only thing in life that gives me true joy. When I finish a programme that works well and hear from people that I have created something useful or valuable, I feel appreciated in a way I rarely experience.

That is why I am asking for help in purchasing a new computer and other equipment, such as a new phone, good-quality headphones, a reliable keyboard and similar tools. I do have a computer, but it is very old and cannot cope with modern requirements. I would also very much like to start experimenting with artificial intelligence. If everything goes according to plan, my goal is to create my own AI system for blind people.

This fundraiser does not oblige anyone to help, and I do not wish to put pressure on anyone. I have simply decided to share my story, in the hope that there will be kind-hearted people who are willing to support me.

I would like to thank from the bottom of my heart everyone who decides to help me achieve this life goal I have set myself for the near future — especially as, given my health, it is difficult to predict what tomorrow will bring.

Yours sincerely,

Kacper Kreft

Hello,

My name is Kacper Kreft. I was born on 9 March 2003. I have had Leber’s congenital amaurosis since birth. Because of this condition, I am completely blind and can only perceive light. In practice, this means I can tell the difference between day and night, but nothing more.

In my free time, when I am not in hospital, I work on creating software that helps blind people use applications that are officially not accessible or do not work well with screen readers. For example, if a service like Facebook were to become inaccessible to screen reader users and blind people could no longer use it, I would do everything within my ability and knowledge to create an alternative interface that allows blind users to access its functionality with fewer difficulties. If I have the strength after dialysis, which I have been undergoing for several months now, I also run my own internet radio station.

A few years ago, I started having heart problems. My heart rate would suddenly rise above 140 beats per minute whilst resting in bed, and during physical exertion it often exceeded 170, which was very dangerous. It has improved somewhat since I gained a bit of weight. At rest, my heart rate now usually stays below 100, which makes everyday functioning possible.

My more serious health problems began about a year and a half ago, when I lost consciousness at work. After that incident, I went to hospital, where doctors discovered abnormalities in my blood and decided that further tests were necessary. In November, I underwent a biopsy of my left kidney to determine the cause, as the test results were inconclusive.

In January, I learnt that I have a genetic kidney disease that had been damaging my kidneys since birth and that they were in a critical condition. Between the biopsy and receiving the diagnosis, at the end of December, I was hospitalised again. I was discharged in early January with results that barely allowed me to function. I was hospitalised again in March, and the situation reached a critical point in May 2025. That was when my long and difficult hospital stay began, lasting over eight weeks. I was admitted to intensive care in critical condition, with life-essential substances in my blood at dangerously low levels. In July, I underwent surgery to implant a catheter that allows me to undergo peritoneal dialysis. I began my first dialysis sessions in mid-August.

Everyone told me that dialysis would help and that I would feel much better. Unfortunately, no one mentioned how exhausting it can be. Dialysis drains a tremendous amount of energy from the body. There are moments after a session when I am unable to get out of bed on my own and need my brother’s help.

Dialysis is also painful, very painful. When the machine tries to drain fluid from the abdomen, even when there is no fluid left, the pain can be so intense that I nearly lose consciousness. Perhaps others experience it without pain, but unfortunately I am not one of them.

That is a brief and admittedly difficult summary of my story. Now I would like to explain why I am here.

I am asking for support for my passion, which I value above all else. It is the one thing in life that truly brings me joy. When I finish a programme that works well and people tell me that I have created something useful or meaningful, I feel appreciated in a way I rarely experience otherwise.

For this reason, I am asking for help with purchasing a new computer and other equipment, such as a new phone, good-quality headphones, a reliable keyboard, and similar tools. I do have a computer, but it is old and can no longer keep up with modern requirements. I would also very much like to start experimenting with artificial intelligence. If everything goes according to plan, my goal is to create my own AI system to help manage my parents’ home.

This fundraiser does not oblige anyone to help, nor do I wish to put pressure on anyone. I simply decided to share my story, hoping that there might be kind people willing to support me.

I sincerely thank everyone who chooses to support me in this life goal that I have set for the near future, especially as it is difficult to know what the future holds given my health.

Kind regards,

Kacper Kreft