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Original German text translated into English
Original German text translated into English
Description
Dear donors.
I have been a pain patient since the age of 15 and have been diagnosed with one of the most painful diseases in the world. Just imagine someone stabbing you in the foot with a red-hot knife and then twisting it in the wound. That's what it feels like to have CRPS (also known as Sudeck's disease). I have CRPS type 2 stage 3 and my disease progresses in episodes. In the first stage, the disease causes my foot to have approximately the 2-3 compartment dimensions. My foot is so sensitive to touch that I scream in pain when I touch it. There is also massive reddening (see picture). I have already passed out twice due to the pain. With type 2 (the rare variant) I have suffered nerve damage. In addition, nerve cells continue to die, which leads to massive pain, and I have less perception under the sole of my foot, for example, which leads to a deterioration in balance. It's not so pronounced for me, but it's still noticeable. The pain is so severe that you imagine that your foot doesn't belong to you. This idea can even become visible in the brain over the years. The brain regions that are responsible for the foot, for example, decrease in brain mass because the desire and visualisation alone is so strong that the brain eventually believes that the foot does not belong to you and the brain regions responsible for this decrease. This can be visible in CRPS patients in general, I have been taking opiates for 10 years and as it is neuropathic pain, it only helps a little on its own. But in combination with other medications, my life has become more tolerable, mainly because the stage has also changed.stage 3 is less painful but the stage can change back to the first and most painful stage. This happens to me once a year and lasts for 3 months. During this time I have the most severe pain and am confined to my bed. The disease can also spread to other parts of the body, I had it on my left knee and left hand. However, with immediate treatment, the condition can disappear completely. Only if you take longer does it become chronic (as with my foot). In addition, it usually takes a long time to find out which illness it really is, as it is not a common illness.
Now I need your help:
I work as a social care worker for the disabled because I absolutely don't want to take early retirement or disability pension, even though I could have done so long ago. I want to lead a reasonably normal life despite the pain. My contract I. Work is coming to an end and will not be extended as I have to go on sick leave more often and will soon be unemployed. As I have a 60% disability, companies are not so keen to take me on as I naturally have more sick leave. I bought a flat and am now broke and really need help with a disabled bathroom. I'm still living with my parents, but they want me out of the flat. But my flat needs to be completely renovated and I'm nowhere near ready to move in. It would be great if you could support me with a donation. So that I can afford just the bathroom. It doesn't have to be a top bathroom, it just has to be functional or suitable for the disabled. However, I really need a bathtub so that I can elevate my foot, as otherwise my foot swells up when I shower and the pain increases. That's why I'm asking for your help.
PS: I am dyslexic and must therefore apologise for my spelling.
Thank you very much for your support
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