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Find out more about a rare syndrome

Find out more about a rare syndrome

 
Maria Depace

IT

Original Italian text translated into English

Show original italian text

Original Italian text translated into English

Show original italian text

Description

I am the mum of a special little girl,

Her name is Melissa and she has a rare condition (frontonasal dysplasia), a malformation of the bones of the skull and face.

Over the past 10 years, Melissa has undergone three

that were very significant.

My wish is to go to America to learn

more about this syndrome and try to find a cure for her.

Thank you so much for all the support you will give to my Melissa.1

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