id: wtbk6m

Renovating a flat for my son with a heart condition

Renovating a flat for my son with a heart condition

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Original Hungarian text translated into English

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Original Hungarian text translated into English

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Description

Hello.

I would like to introduce you to my little boy born on 16.03.2021 with severe complex heart disease (5 types of heart abnormalities in total). It was detected a few hours after birth, not during pregnancy. Then came the cold shower, he is being transferred to Budapest to Gokvi where he will need surgery immediately. So it happened , although not immediately surgery, because they tried to fix it first with medication. It didn't work so she had emergency surgery at 2 weeks where she was given a shunt between her heart and lungs to get enough oxygen. After 1 week she had to have another operation because the shunt was inflamed and she had a chest infection. He was treated for 11 days with an open chest, not much hope for recovery, but he made it !!! ❤️ Even after that things didn't go quite right, more blood went to the lungs than it should have so they did a cardiac catheter. But it was fine. Even after repeated attempts they could not get him off the ventilator. We were transferred to the intensive care unit in Miskolc, where it was difficult to take him off the machine, but he needed oxygen for a long time, he could only eat on a tube, and he got tired very quickly. But it worked, he made it and after 5 months they let our little hero go home ! ❤️ Under close control. Although the joy did not last long, we were back after 1 week due to low saturation. After that came a lot of trouble, hospital every month or so, some for covid pneumonia but mostly respiratory infections.

In February of this year he had another operation where he had a 16mmes blood vessel with a valve in it. Things didn't go well, the first 72 hours were critical , lots of blood loss, heart enlargement, bleeding from multiple sites. They left his chest open. They closed him up after 3 days. He also had high fever, watery eyes, pneumothorax. He got out of plenty of everything... The conrtroll tests are tight, another surgery will be done although I don't know the exact time yet. We spent a lot of time in hospital so I appealed to people for help, there was a lot of spending while we were in there as my partner couldn't work because of the baby. We're trying to sort it out but it's just a lot that's happened...

If you can help us a little bit it means a lot! We want a better and more livable home for our little boy.

Unfortunately, the current apartment has no indoor plumbing which is the biggest problem.

Hygiene is essential for my little boy, of course I will do my best but unfortunately it is not easy. I would like to ask for people's help in this so that we can put the flat in order. Thank you very much in advance.



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