id: tkc2ud

May I be granted another cure for my suffering from Behcet's disease!

May I be granted another cure for my suffering from Behcet's disease!

Original Hungarian text translated into English

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Original Hungarian text translated into English

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Description

Behcet's disease: An autoimmune condition in which the body's own immune system attacks itself

This is a very unpleasant disease, often fatal. Scientists are constantly developing treatments; Hyqvia costs €1,500 per month and is administered via infusion, and they try to keep it under control with the hormone Prednisone. They are developing immunosuppressants, And over time, I developed a brain tumour in the pituitary gland (an attack on the brain centre that controls the body); my little toe has already been amputated; large mouth ulcers make my life difficult, with pain and stinging rashes, I suffer from narcolepsy, which triggers diabetic coma; massive headaches are only alleviated by opiate-based medication; I almost fall into a coma, unable to control myself due to the intense pain. My aim is for there to be a new medicine that immunologists can develop, and I’d like to try it so that at least my life can be symptom-free, without these two-month-long bouts. Furthermore, severe depression, it hurts my heart, it shuts down my adrenal glands, they become sluggish—they stop working, they take time off, my bones become brittle, my legs and bones break anywhere, and I could go on listing how much of me has already been broken. These few illnesses are described in Robert B’s writing *Carpe Diem: On the Edge of Life*, which can be read online in English: *Carpe Diem: On the Edge of Life*

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