id: ndpjsh

Help Me Survive Akathisia and Major Depression

Help Me Survive Akathisia and Major Depression

Updates1

  • Update March 2026 – Still Fighting & Genetic Insights


    Hi everyone,


    It's March 2026 and I'm still fighting every day. Thank you so much to all who donated last year – your help got me through a really tough winter with bills, food and basics covered. I truly appreciate it.

    I couldn't update sooner because things got much harder: my symptoms worsened dramatically, and I lost my father after a painful period. It was overwhelming, and I could barely cope.


    I've been adjusting treatment with my doctor, but progress is very slow. The genomic test (done some time ago) now makes more sense after reviewing it again with AI tools: poor serotonin transporter response, impaired adrenaline processing, and low BDNF explain why medications hit me so hard and why recovery is extremely slow.

    No specialists in neurotoxicology are available here, so the goal is still to taper off meds very gradually, letting my nervous system rebalance naturally.

    I still need support for daily basics. Any donation or share would mean a lot.

    P.S.

    Direct SEPA transfer in euro available – just message me privately and I'll send my IBAN right away.

    Thank you for staying with me.

    Alex

Add updates and keep supporters informed about the progress of the campaign.

Add updates and keep supporters informed about the progress of the campaign.
This will increase the credibility of your fundraiser and donor engagement.

Description

My name is Alex and I’m reaching out with deep vulnerability and hope. I am currently disabled, homebound, and trapped in a daily nightmare caused by a severe neurological condition called akathisia—a cruel and misunderstood reaction to medications that causes constant inner torment, agitation, and fear. It’s not anxiety. It’s not restlessness. It is torture.



This began after I received general anesthesia combined with the antibiotic Tavanic (levofloxacin), followed by a long series of psychiatric medications that worsened my condition. I trusted doctors, but many failed to recognize what was happening. They prescribed more medications, including antipsychotics and antidepressants, which made everything worse. When I complained of unbearable symptoms, I was dismissed or misdiagnosed. I was told it was just generalized anxiety or major recurrent depression. The truth is that my nervous system is in chaos, and I’ve been left to survive this alone.


I currently take a benzodiazepine, an antidepressant and a small dose of antipsychotic that I'm trying to taper off, but these medications cause paradoxical reactions—they worsen my condition instead of helping. Every reduction is a battle. I live in Romania, where resources and awareness about akathisia are extremely limited. Doctors have run out of ideas. I’ve been left to make my own decisions while fighting relentless symptoms every second of the day.


Meanwhile, I lost my home, my job, my friends, the ability to self-care, to drive and everything that resembles a normal life.

I cannot work. I have no income. I am barely surviving.


Despite this, I’m fighting to reduce the medications, heal my nervous system, and rebuild my life slowly. But healing and restarting life from this state takes time, support, and compassion.


I’m asking for donations to help cover basic living expenses (food, electricity, internet) and eventually medical costs that may help me recover. Any support you can give would allow me to breathe a little and reduce the stress that worsens my symptoms.


I've been hospitalized 3 times during past years and each time I got out worse than I got in. I will share with you some of the medical papers that failed to recognize what I'm dealing with and an EEG that shows abnormal brain waves specific to a brain lesion.


If you can't donate, sharing this means the world to me.



Thank you for reading. Thank you for caring. You may help save a life.

Benefits of a recurring donations:
The Organiser receives 100% of your funds - we do not charge any fee
You remain in full control - you can stop the support at any time without any obligations
The Organiser can fully focus on his work
You get permanent access to posts and a special distinction
You don't have to remember about the next payments
It's easier than you think :)

Location

Comments 2

 
2500 characters
  •  
    Anonymous user

    I've suffered with long COVID. Thank you for the words Alex, and for being a friend. Hope this will help.

    hidden
  •  
    User unregistered

    I wish you all the best Alex, I truly hope one day you will recover and regain your life!

    hidden
We prioritize safety. If you have any concerns, please report this fundraiser using