id: mg2ytz

Overcoming life-threatening surgery chronic leukaemia,tumours,systemic diseases

Overcoming life-threatening surgery chronic leukaemia,tumours,systemic diseases

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Original Dutch text translated into English

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Original Dutch text translated into English

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Dear people,

I was diagnosed with autoimmune diseases 11 years ago which took away my vision and made my lymphatic system go haywire.years i was misdiagnosed which allowed the diseases to run their course and made everything worse.during that period i also had to have several surgeries due to several lymphomas that were surgically removed.after 7 years the correct diagnosis of rheumatoid arthritis and system lupus surfaced first and a little later the suspicion of chronic leukaemia and a tumour in the pituitary gland and a tumour in my sinus.on top of that came severe problems with the bark of my adrenal glands and blood pressure and cholesterol which became chonn's disease.Now there are problems with the sugar which gets extremely low because the system lupus attacks my pancreas.In addition, in one year I have been picked up several times by the ambulance and have been in the clinic because of very severe seizures of epilepsy resulting in many severe fractures and the feeling that I was going to die.Because of that there have been huge jaw fractures and chin fractures.I got more teeth as a child that got stuck horizontally in my palate.These have shifted inside because of the fractures and this has caused the systemic lupus to also hit my teeth and my vocal cords.My vocal cords have been operated on and the chronic leukaemia is being treated by the haematologist but the systemic lupus and rheumatoid arthritis have to be stopped because they are making my body sick there is a treatment of tnf therapy.But then the teeth have to be removed internally my jaw joint has to be operated on and the tumour has to be cut out through my mouth which is under the sinus.Without that surgery, no tnf therapy will be started because my immune system is lowered and it is too dangerous to get an infection that can lead to death.The big problem is that the mutual insurance company does not intervene in the extraction of the teeth inside and the treatment for my other teeth, which puts a huge price tag on it.What can be a total of 3400€ I have tried everything to get a settlement to no avail.But the epileptic seizures are getting worse and worse, the diseases are getting worse because they are getting worse. i want to finally be able to start the tnf therapy so that i can partly get my life back, because all the separate diseases cost tons of money every month on medication and follow-ups. there is mutual insurance, but there is still a part that has to be paid by the patient.I used to have a hospitalisation through my work in pharmacy but because of my illness that started 11 years ago, I could no longer claim a hospitalisation on everything that caused the illness or what was related to the illnesses which made it super tough as a single mum.All my dreams have been taken away from me and I feel so guilty that my child had to suffer with it.I have one wish and that is to be able to have the operation and get the right therapy and get my life partially back.Because you can't live like this and hope for the support and good hearts of the people who want to help me. i would be very grateful for that with all my heart. i would like to be able to work again and dream and see a little light in the tunnel and be able to hope and believe in a future because without this operation there will be no treatment and my organs will be further damaged with the end being death and i want to be able to avoid this.Thanks to the kind and good people's support over the past year, I have been able to get the chronic leukaemia under control for which I am very grateful.I can also show the people who support and donate to me proof of the amount that they know for sure for which there is no intervention for the National Health Service this is only the calculation of the amount without intervention the amount is still much higher but the other part there will be intervention from the National Health Service.Thanks dear people in advance for your support and love 🫶

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