id: hxh6a6

Seeking Support for My Severe Epilepsy Condition.

Seeking Support for My Severe Epilepsy Condition.

 
Nils Thuvesson

SE

Description

I have a very severe form of epilepsy, focal, which often spreads to the entire brain, causing me to lose consciousness and risk falling which , which has happened several times, Ive lived with this condition since my late teens and doctors cant find a reason to why it started. And even though I take 18 antiepileptic tablets a day and have tried almost everyone that is available here, it does not help me at all, and I still have around 2 - 3 seizures per week, which often also result in severe body pain afterward. In addition to that, I also have Tourette's Syndrome and other neuropsychiatric disorders, which I also feel I do not receive the help i need for where i currently live. Moreover, my previous husband died from epilepsy, so-called Sudden Unexpected Death in Epilepsy after we just been married for 2,5 weeks, and i miss him so much, and pray to get help for this everyday.


However Cannabis i found out is the only treatment that works for me, i almost do not get any seziours at all when used and it also helps me with my other disabilities, making me feel like i possibly could have a quite normal life in the future.


Me and my husbands dream, and our plan was to move to a country like The Netherlands where treatment with cannabis for such disorders are legal.


I have previously tried vaporizing Cannabis for a little more than 8 months, around 4 times a week in the evenings, and during that time I had no seizures at all, which was a huge relief for me to be free from the torment of this disease. I also experienced that it helped me a lot with my Tourette's and other issues such as sleeping problems, difficulties eating, anxiety, and more.


But unfortunately, I live in Sweden, where any form of Cannabis use, even for medical purposes, is currently prohibited, which was also the reason I had to stop using it. So I worry every day about the future and hope that a change in my life could happen in the future, and to be honest, I don't know how much longer I can endure constantly being tormented by these seizures and the problems they cause.

And yes i have tried CBD in various forms even as a direct medicine but that does not help me at all. So i would greatly appreciate any donations so that i hopefully someday can reach my goal of being completely seziour-free, but also to honor my former husband who is still with me in my heart and to show that I hoppfully can achieve our goal even though he is now resting above.


And yes, the first picture is actually showing me after a hard Epileptic attack that i luckily managed myself!



Bless🙏

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