SHAGGY AND ARIANNA FOR FRAGILE X-SYNDROME

CROWDFUNDING CAMPAIGN

WHAT IS FRAGILE X SYNDROME?

Fragile X Syndrome is a hereditary genetic condition characterized by global developmental delay (neuropsychomotor delay), more or less severe intellectual disability, learning disorders and the ability to relate to others.

HOW MANY CARRIERS OF THIS SYNDROME ARE THERE?

According to what is reported on the American government website, these are the numbers:

“… Female carrier status is estimated to be as high as 1 in 130 to 250 individuals, and the incidence of male carriers is about 1 in 250 to 800 individuals. However, it is essential to note that the carrier frequency can vary greatly based on the diagnostic testing used and the population of interest, with specific populations showing significantly higher or lower disease prevalence. For instance, the prevalence in Columbian males is reported to be 1 in 20, which is 343 times higher than the rest of the world”.

Data font: https://www.ncbi.nlm.nih.gov/books/NBK459243/

GOAL OF THE INFORMATION CAMPAIGN

Fragile-X Syndrome is still considered a rare syndrome and many people do not know it exists. But how can it be rare, if the number of carriers is so high?

The aim is to inform as many people as possible and ask all countries to include free pre-natal tests for everyone.

Raising awareness on the topic will also bring new funds for research.

WHAT DOES THE CAMPAIGN CONSIST OF?

A non-profit commercial will be created, which will be donated to multiple associations linked to this syndrome around the world. Each of them will use it to inform through television and social media, the citizens of their country.

WHO ARE THE TWO TESTIMONIALS?

Shaggy and Arianna are two internationally renowned singers.

A multi-Grammy Award winner and one of the most influential reggae artists propelled by the immense popularity of albums such as “Boombastic” and the multi-platinum sensation “Hot Shot,” Shaggy is the only diamond-selling dancehall artist in music history. He has sold more than 40 million album units, landed 8 singles on the Billboard Hot 100, 7 albums on the Billboard 200 (including 4 in the top 40) and is among the top 3 streamed reggae artists of all time on Spotify. He’s also collaborated with many artists including Sting, Janet Jackson, Bob Sinclair and Arianna herself.

Arianna is a singer, TV and musical actress, who introduced herself to the general public from a very young age, becoming the testimonial singer for Disney in Italy. Protagonist in Rock Music in Detroit, duets with Pit Bull (https://www.youtube.com/watch?v=Wk9PfN2Hphw), Michael Bolton, Will_i_am (https://www.youtube.com/watch?v=u2iuI8fAsmY) and Flo Rida (https://www.youtube.com/watch?v=w_Vp74HOXko). To date she has 8 albums and 16 singles.

Thanks to the generosity and availability of the two testimonials the costs to produce this non-profit commercial have decreased, but we still need to raise Euro 30,000.00