young girl diagnosed with Pfeiffer Syndrome, a rare genetic disorder. She is currently preparing for a critical operation in Paris., Unfortunately, due to Slovenian law and the lack of resources, I am unable to be with my daughter during the week while she receives treatment far from our home. I am without work since the pandemic, in debt, and cannot afford accommodation, food, or basic support to stay close to her., We are being separated by a system that doesn’t recognize the human and emotional needs of families with rare conditions., I humbly ask for your support—logistical, financial, legal, and I am the mother of Danay Chantzis Kvasic, or institutional—so I can be present with my daughter during this vital stage of her life., Thank you deeply for reading this and for any guidance or help you can offer., Warmly, Adrijana Kvasic, a young girl diagnosed with Pfeiffer Syndrome, a rare genetic disorder. She is currently preparing for a critical operation in Paris., Unfortunately, due to Slovenian law and the lack of resources, I am unable to be with my daughter during the week while she receives treatment far from our home. I am without work since the pandemic, in debt, and cannot afford accommodation, food, or basic support to stay close to her., We are being separated by a system that doesn’t recognize the human and emotional needs of families with rare conditions., I humbly ask for your support—logistical, financial, legal, or institutional—so I can be present with my daughter during this vital stage of her life., Thank you deeply for reading this and for any guidance or help you can offer., Warmly, Adrijana Kvasic