Financing expensive treatment abroad for Muscular Dystrophy
Financing expensive treatment abroad for Muscular Dystrophy
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Original Hungarian text translated into English
Original Hungarian text translated into English
Description
I'm Levente Nimer, 23 years old, I live with Duchenne/Becker muscular dystrophy, I'm currently
currently incurable, progressively worsening muscle disease. This condition progressively weakens the
muscles, including the heart and respiratory muscles. I am now fully wheelchair bound
and my condition is deteriorating day by day. The terminal stage of the disease is fatal if the heart and
respiratory muscles are completely dead.
Thanks to advances in science, hope has finally been given: GIVINOSTAT (Duvyzat), an experimental therapy that inhibits HDAC. This
This drug promotes muscle regeneration, reduces inflammation and fibrosis.
The price of 1 monthly dose of the drug is 39476 euros, which is very expensive and I would like to raise the money which is not possible on my own.
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