Dear community,

I am writing to you today with an open heart as a parent, driven by the desire to give my son, Ștefan, a real chance at a better, independent and active life.

Ștefan is now three and a half years old and has already fought a tremendous battle. Diagnosed at a very young age with Spinal Muscular Atrophy (SMA) Type 1, an extremely severe neuromuscular condition, he received the life-saving treatment Zolgensma when he was just 3 months old. It was a huge first step towards life, but his journey does not end here.

Zolgensma halts the progression of the disease, but for Ștefan to build muscle strength, learn to control his body and make real progress, he needs intensive and ongoing rehabilitation therapy (physiotherapy and Medek therapy).

Why do we need your help?

For a child with SMA Type 1, breaks in therapy mean stagnation or even regression. To ensure that Ștefan receives his daily therapies and long-term specialised rehabilitation sessions, we need financial support.

. It is a huge financial burden which, as a family, we cannot bear on our own.

.