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Immunotherapy for Agoston

Immunotherapy for Agoston

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Description

Help us raise the necessary $1.2 million for Ágoston's recovery!


Our little son, Tóth-Helli Ágoston, was diagnosed with acute myeloid leukemia at the age of 3.5 months. While a large percentage of childhood leukemias are now highly treatable, his disease was caused by a rare genetic mutation (CBFA2T3::GLIS2) that affects only a few children worldwide each year (exclusively under the age of 2). Without immunotherapy, the survival rate for this mutation is only around 15-20%.

His doctors have provided him with the best available chemotherapy in Hungary, tailored to his needs, but unfortunately, it did not achieve the necessary success, and he has not reached remission.

The current plan is to try an experimental drug, but based on the available data, it is likely to only extend Ágoston’s life, which is completely unacceptable to us as parents.

There are no further treatment options available for him in Hungary. Only immunotherapy in the USA has the highest chance to save his life. The pharmaceutical company covers the cost of the drug itself, but we must fund the hospital treatment costs on our own.

This requires a minimum of 2 months of hospitalization in the US, which, for foreign patients without local insurance, costs approximately 1.2 million USD, including possible emergency costs as well (~500 million HUF). We are asking for your help to raise this amount.


THANK YOU! 💛


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