Together, let's fight against fibromyalgia

Together, let's fight against fibromyalgia

Description of the collection:

I've been living with fibromyalgia since 2008, but it wasn't until 2023 that I finally got an official diagnosis. Fibromyalgia is an invisible illness that is often difficult to diagnose and affects many people in France. Unfortunately, it is still not recognised as a disability, which complicates care and treatment.

In addition to fibromyalgia, I suffer from a number of associated syndromes that make my daily life even more difficult, such as :

• Carpal tunnel syndrome (pain and numbness in my hands and wrists).
• Irritable bowel syndrome (recurring digestive problems).
• Gynaecological problems such as papillomavirus, pelvic pain and other serious conditions.
• Hypersensitivity to noise, light, sunlight, car headlights, and even television, making every daily activity difficult.
• Hearing and concentration problems, with forgetfulness of words, difficulty finding sentences, or even saying words without realising it, which can be extremely confusing.
• Lack of strength in the arms, hands and fingers, making simple gestures difficult to perform.
• Memory problems and occasions when tasks and events are forgotten.
• Drug treatments (Doliprane, ibuprofen, tramadol, morphine, etc.) that only partially relieve the pain and cause serious side-effects such as mood disorders, depression and a loss of contact with the outside world.

This has prevented me from enjoying life's simple moments, and I haven't been able to go on holiday since 2017. This invisible disease affects every aspect of my daily life.

Together, let's fight against fibromyalgia

Campaign Description:

Since 2008, I have been living with fibromyalgia, but it wasn't until 2023 that I finally received an official diagnosis. Fibromyalgia is an invisible and often difficult-to-diagnose disease that affects many people in France. Unfortunately, it is still not recognised as a disability, which complicates treatment and care.

In addition to fibromyalgia, I suffer from several associated syndromes that make my daily life even more difficult, such as:

• Carpal tunnel syndrome (pain and numbness in the hands and wrists).
• Irritable bowel syndrome (recurring digestive issues).
• Gynaecological problems such as the papillomavirus, pelvic pain, and other serious conditions.
• Hypersensitivity to noise, light, sunlight, car headlights, and even television, making each daily activity challenging.
• Auditory problems and concentration issues, including forgetfulness of words, difficulty recalling sentences, or even saying words that are completely out of context without realising it, which can be extremely confusing.
• Loss of strength in the arms, hands, and fingers, making simple tasks difficult.
• Memory issues and moments of forgetfulness about tasks and events.
• Medications (such as paracetamol, ibuprofen, tramadol, morphine, etc.) that only partially relieve the pain and cause serious side effects, such as mood disorders, depression, and a loss of connection to the world around me.

These issues have prevented me from enjoying simple moments in life, and I haven't been able to go on holiday since 2017. This invisible disease impacts every aspect of my daily life.

Financial objectives:

The aim of this fundraising campaign is to help me live better with this disease and to help other people with fibromyalgia. A percentage of the funds raised will be donated to an association in France that supports research and patients.

Here is the breakdown of the funds:

Financial Goals:

The goal of this fundraising campaign is to help me live better with this disease and to assist others affected by fibromyalgia. A percentage of the collected funds will be donated to an association in France that supports research and people with fibromyalgia.

Here is the breakdown of the funds:

Breakdown of the funds collected :

Fitting work (50%)

• 50% of €12,000 = €6,000

Technical aids and medical equipment (30%)

• 30% of €12,000 = €3,600

Support for research and awareness-raising (15%)

• 15% of €12,000 = €1,800

Fund Distribution:

Home Modifications (50%)

• 50% of €12,000 = €6,000

Medical Equipment and Aids (30%)

• 30% of €12,000 = €3,600

Research and Awareness Support (15%)

• 15% of €12,000 = €1,800

Why make a donation?

Every contribution, however small, makes a difference and helps to improve the lives of patients. By taking part in this fundraising campaign, you are :

• Help to improve the quality of life of patients by financing adapted equipment and improvements to their environment.
• Support the recognition of fibromyalgia and contribute to its treatment.
• Help fund crucial research into understanding fibromyalgia and finding more effective treatments.

Why Donate?

Every contribution, no matter how small, makes a difference and helps improve the lives of those suffering from this condition. By participating in this campaign, you will:

• Help improve the quality of life for patients by funding essential equipment and home modifications.
• Support the recognition of fibromyalgia and contribute to better care for patients.
• Fund research to better understand fibromyalgia and find more effective treatments.

How can I contribute?

1. Make a donation: Choose the amount of your choice and follow the instructions to make your contribution.
2. Share this fundraising campaign: The more people who contribute, the more we will be able to advance this cause.
3. Support the association: Part of the funds will be donated to an association in France to support research and help patients.

How to Contribute?

1. Make a donation: Choose the amount you wish to donate and follow the instructions to complete your contribution.
2. Share this campaign: The more people who participate, the more we can advance this cause.
3. Support the association: A portion of the funds will be donated to an association in France to support research and aid for fibromyalgia patients.

thank you for your support and generosity in the fight against fibromyalgia!

Thank you for your support and generosity in this fight against fibromyalgia!