Together, let’s fight against fibromyalgia

Together, let’s fight against fibromyalgia

Fundraiser description:

I have been living with fibromyalgia since 2008, but it wasn’t until 2023 that I finally received an official diagnosis. Fibromyalgia is an invisible condition that is often difficult to diagnose, affecting many people in France. Unfortunately, it is still not recognised as a disability, which complicates care and treatment.

In addition to fibromyalgia, I suffer from several associated conditions that make my daily life even more difficult, such as:

• Carpal tunnel syndrome (pain and numbness in the hands and wrists).
• Irritable bowel syndrome (recurring digestive problems).
• Gynaecological problems such as HPV, pelvic pain, and other serious conditions.
• Hypersensitivity to noise, light, sunlight, car headlights, and even the television, which makes every daily activity difficult.
• Hearing and concentration difficulties, including forgetting words, struggling to find the right phrases, or even saying words without realising it, which can be extremely confusing.
• Loss of strength in the arms, hands and fingers, making simple movements difficult to perform.
• Memory problems and moments of forgetting tasks and events.
• Medication (Paracetamol, ibuprofen, tramadol, morphine, etc.) which only partially relieves the pain and causes serious side effects such as mood disorders, depression and a loss of connection with the outside world.

This has prevented me from enjoying life’s simple pleasures, and I haven’t been able to go on holiday since 2017. This invisible condition affects every aspect of my daily life.

Together, let’s fight against fibromyalgia

Campaign Description:

Since 2008, I have been living with fibromyalgia, but it wasn’t until 2023 that I finally received an official diagnosis. Fibromyalgia is an invisible and often difficult-to-diagnose condition that affects many people in France. Unfortunately, it is still not recognised as a disability, which complicates treatment and care.

In addition to fibromyalgia, I suffer from several associated conditions that make my daily life even more difficult, such as:

• Carpal tunnel syndrome (pain and numbness in the hands and wrists).
• Irritable bowel syndrome (recurring digestive problems).
• Gynaecological problems such as the papillomavirus, pelvic pain, and other serious conditions.
• Hypersensitivity to noise, light, sunlight, car headlights, and even television, making every daily activity a challenge.
• Hearing problems and difficulty concentrating, including forgetting words, struggling to recall sentences, or even saying things that are completely out of context without realising it, which can be extremely confusing.
• Loss of strength in the arms, hands, and fingers, making simple tasks difficult.
• Memory problems and moments of forgetfulness regarding tasks and events.
• Medications (such as paracetamol, ibuprofen, tramadol, morphine, etc.) that only partially relieve the pain and cause serious side effects, such as mood disorders, depression, and a loss of connection to the world around me.

These issues have prevented me from enjoying simple moments in life, and I haven’t been able to go on holiday since 2017. This invisible illness affects every aspect of my daily life.

Fundraising goals:

The aim of this fundraiser is to help me live better with this condition and to support others living with fibromyalgia. A percentage of the funds raised will be donated to a charity in France that supports research and patients.

Here is how the funds will be allocated:

Financial Goals:

The aim of this fundraising campaign is to help me live better with this condition and to support others affected by fibromyalgia. A percentage of the funds raised will be donated to a charity in France that supports research and people with fibromyalgia.

Here is the breakdown of the funds:

Breakdown of funds raised:

Home improvements (50%)

• 50% of €12,000 = €6,000

Assistive devices and medical equipment (30%)

• 30% of €12,000 = €3,600

Support for research and awareness-raising (15%)

• 15% of €12,000 = €1,800

Fund Distribution:

Home modifications (50%)

• 50% of €12,000 = €6,000

Medical Equipment and Aids (30%)

• 30% of €12,000 = €3,600

Research and Awareness Support (15%)

• 15% of €12,000 = €1,800

Why make a donation?

Every contribution, however small, makes a difference and helps improve patients’ lives. By taking part in this fundraising campaign, you:

• Help improve patients’ quality of life by funding suitable equipment and adaptations to their environment.
• Support the recognition of fibromyalgia and contribute to its management.
• Help fund crucial research to understand fibromyalgia and find more effective treatments.

Why Donate?

Every contribution, no matter how small, makes a difference and helps improve the lives of those suffering from this condition. By participating in this campaign, you will:

• Help improve the quality of life for patients by funding essential equipment and home modifications.
• Support the recognition of fibromyalgia and contribute to better care for patients.
• Fund research to better understand fibromyalgia and find more effective treatments.

How to contribute?

1. Make a donation: Choose the amount you wish to give and follow the instructions to make your contribution.
2. Share this fundraiser: The more people who take part, the further we can advance this cause.
3. Support the charity: A portion of the funds will be donated to a charity in France to support research and patient support.

How to contribute?

1. Make a donation: Choose the amount you wish to donate and follow the instructions to complete your contribution.
2. Share this campaign: The more people who participate, the more we can advance this cause.
3. Support the charity: A portion of the funds will be donated to a charity in France to support research and aid for fibromyalgia patients.

Thank you for your support and generosity in the fight against fibromyalgia!

Thank you for your support and generosity in this fight against fibromyalgia!