id: 6s64zt

Julcia's treatment and rehabilitation

Julcia's treatment and rehabilitation

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Description

Julia is a little warrior who bravely fights for her life and health every day. Let's help her in this fight! Since birth, Julia has had to struggle with enormous pain, the inability to move freely and very low immunity. Julia cannot lift her head, does not sit down, does not grasp anything. Her eyesight and hearing do not allow her to communicate because she does not process what she sees and hears. During the necessary rehabilitation to improve Julia's motor system, we struggle with poor neck muscle tension, unfortunately this causes tension in the rest of the muscles, which causes her a lot of pain and tears. Julia suffers from a very rare genetic disease. CANAVAN disease. She is the one who takes away our daughter's health and life every day. It leads to quadriplegia, brain degradation, loss of vision and hearing, muscle spasticity, epileptic seizures, inability to eat and drink independently, and ultimately to the taking of life at a very rapid pace. Despite this, our daughter fights bravely and her smile means everything to us. The only chance to fight the disease is gene therapy treatment in the USA and demanding daily rehabilitation. Regular care by a pediatrician, ophthalmologist, neurologist and speech therapist. We are doing everything to ensure that Julcia's condition is good enough for her to qualify for treatment abroad. Every day is worth its weight in gold, because therapy in the USA is only used for up to 30 months. life. We enjoy every day we can spend together. The funds we collect are needed for current treatment in Poland and in the USA. Visits to specialists, rehabilitation equipment, trips, specialist tests, and rehabilitation. Very large funds are needed, but we believe that it will be possible. We will not give up and we will fight for Julia's life!


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